This project is developing patient reported outcome measures (PRO) for adults and children across all levels of literacy. As a cooperative agreement with NIH, UNC is part of a network of sites to develop measures for adults. UNC is also focusing its efforts on an independent project to develop measures for children ages 8-17. Patient Reported Outcome Measurement Information System (PROMIS) instruments are developed using item response theory with the potential for developing computerized adaptive testing. Supplemental funds were received in 2007 to expand the scope of the pediatric PRO item banks with the addition of much needed parent proxy-report item banks. These proxy-report banks will capture PROs for children who are too young (under age 8), cognitively impaired, too ill, or too fatigued to complete a self-report PRO instrument.
Principal Investigator: Darren A. DeWalt, M.D.
Funding Source: National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH
Total Project Period: 09/28/04 – 07/31/13